Normal it is not, but we survive

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Today my little Princess Prez turned four. When I was diagnosed, she wasn't yet two years old. Unfortunately, I was not able to be with her today to celebrate her birthday.  Trading birthdays for hospital visits is common place in the world of dominating Multiple Myeloma.

Although I rarely realize it at this point in the journey, life for us has been set to constant survival mode, probably something most cancer patients experience. So missing a birthday; albeit a big disappointment, you learn to scoot around the issue by selecting a different day; although not exactly the same.

Today I am getting a check up which has included a bone marrow biopsy (#8 for the books) and two MRIs (too many to remember). The constant scanning of the body for cancer seems as normal as brushing your teeth every night before bedtime. It's just what you do.

I forget sometimes that this life is far from normal. Dominating MM is what we have known to do over the last two years. We would love for the game to be over and move on to dominating simple old regular life, but we aren't there yet.  We have adjusted to a life where we can plan things 4 days in advance, but it is still much a struggle to plan much beyond that.

We are looking forward to our first normal holiday... and all I want for Christmas is to be there this year; not in the hospital.


We have so much to be thankful for and we know that it is the prayers of many that continue to sustain us in this wild adventure. It helps us forget how wild this adventure really is. Many thanks for that.